Be Joyful in Hope

An evening can begin like this: And it can end like this: My day can change in five minutes. Then we have the absence/petit mal siezures. These can last from ten seconds to almost a minute and occur with no warning. If I am standing, I will fall. A good day is two to five … Continue reading Be Joyful in Hope

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Where No One Stands Alone

The past two weeks have been a set back with a total of four "seizure events" and a number of what my doctor says are similar to a petit mal where I zone out and cant respond. My brain decides breathing is the least of it's priorities and this puts responsibility on my caregivers to … Continue reading Where No One Stands Alone